Autism charities can portray autistic people as helpless and a burden – our research shows why it matters

Source: The Conversation – UK – By Helen Abnett, Research Fellow, University of Hertfordshire

Roman Samborskyi/Shutterstock

Autism charities are important organisations. They provide essential services for autistic people, influence policy decisions, and often speak on behalf of autistic people.

This means that how these charities write about autistic people may influence how society understands what it means to be autistic. The words and pictures that autism charities choose to use affect how autistic people are understood, perceived and cared for. This really matters, as autism is still often stigmatised.

Our recent study shows that the language and images large autism charities use mainly portray autistic people as a problem. In contrast, charities represent themselves as the solution to this problem.

In England and Wales, different kinds of charity organisation are crucial providers of public services. Charities are often seen by government as the best way to meet the needs of less-heard or underserved groups, including autistic people. Some receive specialist care and education services from autism charities.

These charities also influence policy discussions and decisions. Research conducted by autism charities is regularly mentioned in parliament. The NHS refers autistic people and their carers looking for support to both national and local charities.

Previous research has shown how certain types of charities (particularly large international development charities) describe the people they are seeking to support in developing country communities in negative and problematic ways. People are often portrayed as “passive”, “voiceless” and “(culturally) backward”.

Similarly, a small amount of research demonstrates that autism charity advertising and websites consistently convey negative portrayals of autistic people. For example, one previous study describes how an advert for a UK charity depicted autism as “a child-enveloping monster that had to be destroyed to allow a boy to live a normal life”.

How we conducted our research

For our study, we identified the largest autism charities in England and Wales. We used data held by the Charity Commission to identify charities with incomes of £10 million or more and that only provided support to autistic adults, children or both. There were 11 charities that met these criteria. Then, we downloaded the most recent annual reports and accounts for these charities.

We explored how autism charities described autistic people, themselves and the government. We used critical autism studies – which seeks to question stereotypes, and views autism as a difference rather than a disorder – as an approach to evaluate and explain the reports, and suggest how things could be improved.

We found that autistic people are largely portrayed as problems, as challenging and as a burden. Autistic people are frequently depicted as being needy and infantile. Every single charity depicts autistic people as needing to change. Autistic people, they say, should be more communicative or resilient.




Read more:
Why the autism jigsaw puzzle piece is such a problematic symbol


We think that the use of this kind of language and imagery has negative consequences for wider societal attitudes towards autistic people. In contrast, in these documents, charities – who did not appear to be led by autistic people – represented themselves as experts, with the authority to act for and speak on behalf of autistic people.

This links to an overwhelming message in the reports that these charities need to be able to do more, to be bigger and often better-known, and that they need more funding to enable them to achieve this.

Gigantic red hand points at defeated man sitting on red floor.
Charities need to help foster agency in people with autism.
Master1305/Shutterstock

This seems to reflect the “non-disabled saviour” trope that has been found to be common in popular culture. This trope highlights the action, even heroism, of non-disabled people “saving” disabled people, rather than centring disabled people’s agency.

All these charities also describe themselves as being funded by government. Alongside this, however, government is primarily portrayed as a barrier to the effective provision of services for autistic people. Government funding and policy decisions are described as arbitrary and inconsistent. It suggests a government (at both local and national level) that is ineffective and unreliable.

What should change?

We hope our findings encourage autism charities to reflect on how they describe the people they exist to support. Words and imagery should convey the reality of autistic lives rather than leaning on outdated notions of pity or burden.

That starts with meaningful autistic representation at every level of charity leadership, including decision-making roles. Representation shouldn’t be tokenistic. It should shape how organisations operate and communicate.

Charities and governments also need to rethink the current system of service provision and funding, which often leaves charities overstretched and autistic people underserved.

Most of all, we hope our research helps to contribute to a society that recognises autistic people not as problems to be solved, but as people to be valued and understood on their own terms.

The Conversation

Helen Abnett has previously received funding from the Economic and Social Research Council.

Aimee Grant receives funding from the Wellcome Trust, MRC and ESRC.

Kathryn Williams receives funding from the Economic and Social Research Council. She is also the research director for Autistic UK CIC, a non-profit Autistic-led organisation seeking to improve the representation and wellbeing of Autistic adults across the UK.

ref. Autism charities can portray autistic people as helpless and a burden – our research shows why it matters – https://theconversation.com/autism-charities-can-portray-autistic-people-as-helpless-and-a-burden-our-research-shows-why-it-matters-267385

The conflation problem: Why anti-Zionism and anti-semitism are not the same

Source: The Conversation – Canada – By Mira Sucharov, Professor of Political Science, Carleton University

With antisemitism on the rise while Israeli-Palestinian relations remain at an historic low, one question that continues to dog public discourse is whether anti-Zionism is a form of antisemitism.

The stakes within the Jewish community have recently increased, with the issuing of a letter signed by more than 850 American rabbis and cantors opposing New York City mayoral frontrunner Zohran Mamdani due to his opposition to Zionism. The letter argues that anti-Zionism “encourage[s] and exacerbate[s] hostility toward Judaism and Jews.”

Why does the distinction matter?

If anti-Zionism is understood to be antisemitism, then those protesting or otherwise articulating deep opposition to the governing ideology of the state of Israel could find themselves on the receiving end of public opprobrium — harsh criticism and disgrace.

A global debate with deep roots

People in Canada and the United States have lost employment offers and jobs for seeming anti-Zionist.

This debate is not new, however. In 2022, Jonathan Greenblatt, head of the Anti-Defamation League, stated that “anti-Zionism is antisemitism” and that anti-Zionism is “an ideology rooted in rage.” A year later, the U.S. House of Representatives passed a resolution stating that “anti-Zionism is antisemitism.”

In 2017, French President Emmanuel Macron called anti-Zionism a “reinvented form of antisemitism.” And perhaps most importantly, against this backdrop is the definition of antisemitism adopted by many countries, including the U.S. and Canada, which brings the two concepts very close together, if not outright equating them.

Specifically, the International Holocaust Remembrance Alliance defines antisemitism, among other things, as “denying the Jewish people their right to self-determination (e.g., by claiming that the existence of a State of Israel is a racist endeavour).”

What data reveals about Zionism

But is anti-Zionism really antisemitism?

To determine whether anti-Zionism is antisemitic, we first need to think about how we define Zionism. As a Canadian Jewish political scientist, my own research has found that the term Zionism is understood in wildly different ways.

In 2022, I surveyed American Jews with a weighted sample to account for various demographics. I found that while 58 per cent identified as Zionist, 70 per cent identified as such when I defined Zionism as “a feeling of attachment to Israel.” When I defined Zionism as a “belief in a Jewish and democratic state,” the number rose slightly, to 72 per cent.

But a very different picture emerged when I presented a vastly alternate definition of Zionism. If Zionism, I offered, “means the belief in privileging Jewish rights over non-Jewish rights in Israel, are you a Zionist?” Here, respondents’ support for the kind of Zionism experienced by Palestinians plummeted: only 10 per cent of respondents said they were “definitely” (three per cent) or “probably” (seven per cent) Zionist, according to this definition, with a full 69 per cent saying they were “probably not” or “definitely not.”

A lifetime of analysis of Zionism, and adopting various labels at different phases of life for myself — I have at times identified as progressive Zionist, liberal Zionist, anti-Zionist, non-Zionist and none of the above — leads me to conclude that anti-Zionism and antisemitism should be considered distinct concepts.

Identity, nationalism and belonging

Those who see anti-Zionism as antisemitic deploy various arguments.

One is that self-determination is a right, and denying that right to Jews — and sometimes seemingly only to Jews — is discriminatory and prejudicial. But while everyone has the right to self-determination, no one has the right to determine themselves by denying the rights of others to do the same.

Another is that given that the majority of Jews by most accounts embrace some form of Zionism, denying a part of their identity is hateful. But unlike most other markers and symbols of ethnic or religious identity, Zionism has historically, and continues to, directly affect another ethnic group: namely, Palestinians.

Contrast this kind of identity with dietary laws, clothing restrictions, modes of prayer and one’s relationship to sacred texts: none of these aspects of identity necessarily affect another group. By contrast, the historical record of how Zionism has affected Palestinians is vast.

A third argument concerns antisemitism in general — that every other group gets to define the terminology around their own oppression, and therefore so should Jews. But again, when a state — which by definition interacts with others within and outside its borders — is brought into the equation, the debate about antisemitism ceases to be about only Jews.

At its core, Zionism is a political ideology. A cornerstone of liberal society is political debate, including subjecting ideologies to the stress test of critique. These ideologies include capitalism, socialism, social democracy, communism, ethno-nationalism, settler colonialism, theocracy, Islamism, Hindu nationalism and so on.

In the right of others to support, oppose, analyze or criticize it, Zionism is — or at least should be — be no different.

The personal and the political

I understand why many Jews feel that anti-Zionist actions or statements are hateful to their identity. Most Jews have grown up believing that to be Jewish is to feel a deep connection to the state of Israel.

I grew up singing Hatikvah, Israel’s national anthem, every evening at Hebrew summer camp in Manitoba as we lowered the two flags hanging from the flagpole: one the flag of Canada, the other, of course, of Israel.

And in many synagogues across Canada, it is typical to hear the Prayer for Israel recited, and it is not uncommon for the Israeli flag to be displayed prominently. At one synagogue I attended last year for a family celebration, there were even depictions of Israel Defense Forces soldiers etched into the stained-glass windows above the sanctuary.

But to feel connected to Israel — the land, the people, the safe refuge it has served for Jews in crisis, especially but not only after the Holocaust — one doesn’t necessarily need to embrace its governing ideology.

One can seek to understand the harm Zionism has caused to Palestinians. One can try to consider alternative framings, ideologies or governing structures that would enable Israelis to thrive along with Palestinians.

As Zionist founder Theodor Herzl famously said, “If you will it, it is no dream.”

The Conversation

Mira Sucharov has received funding from the Social Sciences and Humanities Research Council. She is on the Advisory Council of New Israel Fund-Canada, sits on the task force of the Nexus Project, and is a founding signatory of the Jerusalem Declaration on Antisemitism.

ref. The conflation problem: Why anti-Zionism and anti-semitism are not the same – https://theconversation.com/the-conflation-problem-why-anti-zionism-and-anti-semitism-are-not-the-same-267676

Struggling with closure? Here are some things you can try

Source: The Conversation – Canada – By Chantal M. Boucher, Assistant Professor, Clinical Psychologist, University of Windsor

We all want closure. A breakup, a sudden job loss, or the death of someone we love can leave us desperate for answers. Wars, natural disasters and shared tragedies stir the same kind of longing.

Our need for closure runs so deep, it’s echoed everywhere — in movies, novels, songs about heartbreak and loss, even in everyday phrases like “moving on” or “getting over” something.

However, closure is easier said than done. Sometimes it never fully arrives. When it doesn’t, unfinished business can weigh on us, affecting our mood, our health, our identity and our relationships. In a world of growing uncertainties, learning how to cope with what’s “open” or unresolved is essential.

As a psychologist, I am interested in studying why closure matters, why it’s hard to find and how we can begin to heal when life fails to provide clear answers.

What is closure, and why does it matter?

Closure is the psychological sense of resolution felt when a painful or confusing experience is settled enough that it no longer demands constant mental and emotional energy.

It’s a sense that an event is understood, settled and no longer bothersome. Without it, old memories intrude like uninvited guests, resurfacing with regret, anger or confusion, even years later.

Trauma research shows unresolved memories can feel as though they’re happening right now until they’re reframed as part of the distant past. Everyday hurts work the same way.

Resolution frees the mind to focus on what matters now — our goals, our emotional needs and the people around us — with calm and clarity. This is why so many turn to therapy, self-help resources and other tools to make sense of, find peace with or otherwise close open parts of their lives.

Measuring closure: A step forward

Despite its popularity and adaptive value, closure has been hard to study because it has been hard to measure. A new tool colleagues and I have developed, the Closure and Resolution Scale, is changing that.

This self-report measure captures multiple facets of resolution — finality, understanding, distance, emotional relief, mental release, even behavioural shifts — offering a comprehensive picture of what closure looks and feels like for people.

Clinicians and researchers can use the CRS to track progress, test interventions and identify what helps or hinders resolution.

Our preliminary work, aided by research assistant, Meaghan Tome, suggests that beliefs about finding closure are as rich and nuanced as the construct itself.

Some see it as self-driven, others as dependent on someone else. Some treat it as active problem-solving, others as quiet acceptance. Some lean on internal change, others on external action. These personal theories shape how we seek — or avoid — closure in our own lives.

Why we struggle to find closure

Why does closure often feel out of reach? Research suggests several reasons.

Ambiguity: When stories feel unfinished, like when we’re ghosted, the mind scrambles to fill in the blanks. We crave coherent explanations, but life doesn’t always provide them.

Avoidance: Pain hurts. Memories can spark guilt, shame, fear or grief, and our natural inclination is to push these feelings away. Avoidance offers short-term relief but delays real healing. What we resist persists.

Barriers: Open memories are often interpersonal. People who lack closure may feel like they need an apology, explanation or conversation that never comes. Limited time, money or unsupportive environments can make getting closure feel impossible.

Working toward closure

If you or someone in your life is struggling with closure, here are a few things you can try:

Talk it through. Therapy can help name the experience, examine thoughts, manage emotions and identify steps toward resolution.

Write it out. Expressive writing and journaling can ease intrusive memories and facilitate new meaning. Try writing an unsent letter when direct dialogue isn’t possible.

Shift perspective. Reframe the story from an outside view or focus on the broader significance to gain clarity and distance.

Lean on others. Friends, peers or people who’ve “been there” can offer comfort and validation.

Rethink closure. Some endings remain unresolved. For ambiguous losses, rituals, meaning-making and flexibility can help to live with uncertainty.

Act on values. When change is possible, take purposeful steps that align with your values — have the conversation, set boundaries, leave harmful situations. When it isn’t, let go, treat it as a lesson rather than a weight and redirect your energy.

Beware the closure trap

Not every experience is “closable” in the way we might hope. Some losses are ambiguous. Some events remain unclear. And rigid ideas about what closure should look like can keep us stuck.

A healthier aim is to make space for what can’t be answered, create meaning where we can and live our values alongside the unknown — freeing attention and energy, with acceptance and compassion, for what matters now.

Closure isn’t always possible, but new meaning and movement forward always are.

Looking ahead

Closure isn’t about forgetting the past. It’s about learning to live with it, answers or no answers. What we know so far is that closure is deeply personal, impacting our health, our relationships and our views of ourselves and others.

While therapy, writing, social support or values-guided actions can help, the path to resolution is rarely one-size-fits-all. Tools like the Closure and Resolution Scale can help us to better understand the idiosyncrasies of this journey.

In the end, what often hurts most is not an event itself, but the silence and questions it leaves behind. The good news? Closure doesn’t have to be given by others. It can be chosen.

Sometimes the most powerful ending is the one we write ourselves.

The Conversation

Chantal M. Boucher does not work for, consult, own shares in or receive funding from any company or organisation that would benefit from this article, and has disclosed no relevant affiliations beyond their academic appointment.

ref. Struggling with closure? Here are some things you can try – https://theconversation.com/struggling-with-closure-here-are-some-things-you-can-try-264856

The fate of Marineland’s belugas expose the ethical cracks in Canadian animal law

Source: The Conversation – Canada – By Maneesha Deckha, Professor and Lansdowne Chair in law, University of Victoria

Most people think countries like Canada have strong animal protection laws, but it doesn’t. A case in point is the unfolding tragedy-in-the-making at Marineland.

Facing economic ruin amid waning public acceptance of whale captivity, Marineland has threatened it will euthanize its remaining 30 beluga whales unless the government provides emergency funding for their care.

This ultimatum follows the federal government’s recent denial of Marineland’s request for an export permit to ship the belugas to a large theme park in China. Fisheries Minister Joanne Thompson denied the permit due to concerns that the belugas would be used for entertainment — a fate now illegal in Canada since the 2019 ban on capturing cetaceans for display.

The 2019 federal legislation banned bringing new cetaceans into captivity, subject to a few exceptions. Ontario passed a similar law in 2015. However, the cetaceans who were already in captivity were not included, effectively preserving Marineland’s property rights over its remaining animals.




Read more:
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But with changing public attitudes, Marineland now has a deteriorating facility and expensive care on its hands for animals it can no longer use to turn a profit.

The threat to kill the belugas as a solution to its economic woes, while shocking, reflects the ethical emptiness of the Canadian legal system when it comes to animals. Simply put, Canadian law still allows human and corporate owners to kill their animals because animals are legally treated as “property.”

The weakness of Canada’s animal cruelty laws

Marineland can carry out its “euthanasia” so long as it doesn’t run afoul of tepid anti-cruelty laws, which are poorly enforced, as demonstrated by Marineland’s history.

Animal advocates have long argued that captive and socially deprived animals at Marineland have suffered for decades. A 2012 Toronto Star investigation series brought overdue and much-needed public and prosecutorial attention to the park, resulting in more than 200 visits by provincial inspectors since 2000.

Even so, since 2019, 20 whales have died in Marineland’s care. The park has only been charged with animal cruelty a handful of times, and all of those charges were eventually dropped. Other complaints to Animal Welfare Services, the provincial body responsible for the enforcement of anti-cruelty legislation, have largely gone nowhere.

In fact, anti-cruelty charges against Marineland have only gone ahead twice: once in 2021 regarding water quality for the cetaceans and once in relation to its care of black bears in 2024.

The dearth of legal sanctions for Marineland, and its ability to hold the lives of its belugas as a bargaining chip, highlights the need for a legal paradigm shift.

But it’s not just the interests and needs of whales that are at stake here. Other animals matter, too, not least the non-cetaceans still at Marineland and the animals trapped in farms, labs and zoos.

Challenging human exceptionalism

Book cover of 'Animals as Legal Beings' by Maneesha Deckha. It has a painting of a monkey on the cover
‘Animals as Legal Beings’ by Maneesha Deckha.
(University of Toronto Press)

As I’ve written at length in my book Animals as Legal Beings, we need to displace the human exceptionalism that characterizes our laws and shapes our relationships with all animals — even dogs, cats and other companion animals.

This means rejecting the idea that humans are superior and animals are merely “property.” It also means valuing and respecting animals enough to stop their immense suffering in captive industries.

Eliminating human exceptionalism would dramatically reshape society by calling for structural changes to our economy, laws and daily practices. But it would benefit all of us.

Now, more than ever, we need to see the links between the dismal legal treatment of animals and other social issues. As I have also written about, human exceptionalism in the law undermines efforts to surmount sexism and racism because all of these systems depend on devaluing animals.

Human exceptionalism is also incompatible with reconciliation and decolonization, which require respect for Indigenous worldviews and laws. Many Indigenous legal orders view animals as equals, kin and beings with their own intentions, families and life purposes.

Keeping belugas and other animals in captivity disavows animal autonomy and devastates animal families. The suffering of captive animals is part of a broader failure to see animals as fellow beings with their own rights.

Protecting animal lives

Human exceptionalism is at the heart of climate change, biodiversity loss, ocean warming and other planetary health crises. The same extractive logic that drives industrial pollution, deforestation and climate destruction also governs how we treat animals.

While whales in the ocean have it better than the belugas still enduring captivity at Marineland, all animals — no matter where they live — are unjustly harmed by a social and legal system that privileges human and corporate interests and runs roughshod over the interests of non-humans.

The belugas and other animals at Marineland deserve to live. A legal system that allows them to be killed because it is economically convenient is one that needs to change. It’s not the belugas that should be euthanized, but rather the human exceptionalism that continues to drive Canadian law and policy.

We can transition away from this outdated and harmful worldview toward a future that views justice and compassion from an interspecies lens and will uplift us all.

The Conversation

Maneesha Deckha is a monthly supporter of the advocacy group Animal Justice.

ref. The fate of Marineland’s belugas expose the ethical cracks in Canadian animal law – https://theconversation.com/the-fate-of-marinelands-belugas-expose-the-ethical-cracks-in-canadian-animal-law-267500

Ethiopian quarter: how migrants have shaped a thriving shopping district in South Africa’s city of gold

Source: The Conversation – Africa – By Tanya Zack, Visiting senior lecturer, University of the Witwatersrand

Since its founding in 1886, Johannesburg, has been a city of migrants, internal and international. But the economic capital of South Africa has undergone big changes since 1994 when South Africa became a democracy. One such change involves migration into the city by people from other African countries.

A new book, The Chaos Precinct: Johannesburg as a port city, by Tanya Zack traces how migrant Ethiopians have shaped a trading post in Johannesburg’s inner city. Zack, a planner who specialises in urban policy, regeneration, informality and sustainable development, explains how the Ethiopians did it.

What space have Ethiopian migrants carved out in the centre of Johannesburg?

The book is set in the shopping centres of the so-called Ethiopian Quarter, in high-rise, formerly commercial buildings in the inner city of Johannesburg. It is a cross-border shopping hub of thousands of cupboard-sized shops crammed into buildings. It defies the categories of formal or informal, of wholesale or retail. And it is where people from all of southern Africa come to shop for fast fashion.

While migrants from several countries trade here, the trading post was pioneered by and remains dominated by Ethiopian and Eritrean migrants. It is an extraordinary shopping district in what were high-rise medical buildings. These office towers centre on Rahima Moosa (previously Jeppe) Street, where medical practitioners and pharmaceutical companies once agglomerated.




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Buildings that had been underutilised or abandoned became the canvas for an entrepreneurial transformation. Ethiopian migrants led the repurposing of these structures into over 3,000 tiny shops. Shopfronts are linked to storerooms located higher up in the buildings or nearby spaces. This new retail footprint wasn’t known in Johannesburg three decades ago. And the scale of trading has attracted many infrastructure uses that support the transnational movement of goods and people.

It was not supported by formal planning or pension funds, but developed by migrant entrepreneurs, one shop at a time.

They draw on global supply chains, particularly Chinese wholesalers operating in warehouse-style malls west of the inner city, to access a steady stream of fast fashion, cosmetics and household items. Inner-city-based Ethiopian traders then retail these goods in individual or smaller quantities. Their clientele is composed largely of cross-border traders who on-sell the products throughout southern Africa.




Read more:
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This model has effectively turned the inner city into an inland port. It’s a logistics hub where goods circulate rapidly, and where shoppers are embedded in an informal yet highly organised distribution network.

The inner-city street grid, first surveyed in 1886 during Johannesburg’s mining camp era, consists of very short blocks, which amplify pedestrian and vehicular congestion. It’s a frenzied shopping environment.

Shopkeepers and stallholders have maximised their display areas through creative lightweight architectures. Small shopfronts are linked to storerooms higher up in buildings or nearby. Sidewalks are lined with street vendors, forming mini corridors.

Internal arcades in the buildings further maximise the retail footprint. This hybrid, vertically integrated structuring has generated a real estate boom in previously underutilised buildings in a flagging property market.

The success of this enclave is also tied to the migrants’ ability to craft both social and commercial networks. Migrant traders and cross-border shoppers have relationships based on trading through information sharing, mutual assistance, and informal credit mechanisms. Traders are necessarily adaptive. They adjust to the pace of demand, shifting product lines quickly. They also coordinate closely with suppliers and resellers throughout Southern Africa. The spaces they use and adapt are similarly flexible.

This combination of adaptive reuse, dense retail specialisation and networked entrepreneurship has allowed Ethiopian migrants to carve out a commercial territory that is at once highly visible and deeply embedded in regional trade flows.

South Africa has been harsh towards informal economic activity. How has this been managed?

The Ethiopian Quarter exists in a context of often-hostile municipal and national governance.

South Africa has historically oscillated between tolerance and repression of informal economic activity, particularly when driven by foreign migrants. Law enforcement campaigns have regularly targeted street traders and migrant shopkeepers. Traders and shoppers alike face the constant threat of violent policing, corruption, theft, and harassment. Uniformed police or wardens regularly confront them, demanding that they prove their migrant status. There’s talk of being detained in vehicles until a bribe is paid.

Ethiopian migrant traders have developed a range of strategies to navigate the challenges of hostility. They co-locate with other Ethiopian traders, and rely on ethnic and commercial networks to absorb shocks and share information about law enforcement activities.

Ethiopian traders have also innovatively adapted their physical and commercial operations to reduce vulnerability. Shops are designed to control stock and display goods while concealing cash and high-value items. The light architectures and arcade designs of Jeppe also make it possible to conceal the shop in the event of raids.




Read more:
Johannesburg fire disaster: why eradicating hijacked buildings is not the answer


Shoppers spend as little time as possible inside the crime-ridden Johannesburg CBD. On the day they choose goods, they often carry no money. They return later with cash to purchase goods as swiftly as possible so that cash is not carried unnecessarily. Many hide cash on their bodies.

The infrastructures that have developed to service the port-like functions of this massive cross border trading hub offer storage, package, information exchange and distribution services. Hotels, buses and storage facilities provide relative safety for cross-border shoppers who must navigate a city known for crime. A 2017 survey, funded by the Johannesburg Inner City Partnership,
found that over 60% of retailers had experienced physical assault. 38% reported regularly giving police officers something to mitigate harassment.

What lessons do you draw about how cities should govern migration?

The cross-border shopping hub demonstrates that migrant-driven informal economies are engines of economic activity. Estimates based on the 2017 cross border shopping survey showed that shoppers in the Jeppe district alone spent close to US$600 million annually. This was twice the turnover of Sandton City, at that time Africa’s richest mall.




Read more:
Johannesburg’s creative hubs are booming: how artists are rejuvenating a failing inner city


The activities of Jeppe mimic international entrepots like Singapore and Hong Kong. They offer information exchange, repackaging and distribution services for goods flowing from China to international destinations. This Johannesburg entrepot has regional significance, distributing goods throughout southern Africa. But it’s under-recognised by municipal authorities.

A law and order approach must at least be coupled with a developmental approach. Cities that aim to govern migration must integrate migrant economic activity rather than suppress it.




Read more:
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Support through infrastructure improvements and security provision would amplify Jeppe’s economic impact.

This includes recognising the legitimacy of informal trading spaces, investing in basic infrastructure and safety, and developing regulations that protect safety while accommodating new building uses.

Partnership approaches that involve traders’ associations, building managers and community intermediaries to co-manage spaces would be valuable.

What does your work tell us about a city that’s been in decline. And solutions?

The burgeoning economy in Jeppe needs to be recognised alongside the private investments in Johannesburg that are celebrated for their regenerative capacity. This migrant enclave demonstrates how urban regeneration can evolve out of the actions of thousands of actors.

The challenge is to direct, support and harness this energy.




Read more:
Cities are central to our future – they have the power to make, or break, society’s advances


If we were to think of Johannesburg as a port, how would we understand and use the ecosystems of trade, movement and distribution that this networked economy has created? What other services could flow through these ecosystems? And what safety, mobility and public infrastructure services are required to enhance these entrepot functions and claim this role for the city, an African urban hub tied to multiple cities and small towns across the continent?

The cross-border shopping hub of Jeppe offers hope for an inland entrepot to be recognised, supported and expanded to offer the global services that Johannesburg’s infrastructure can provide.

The Conversation

Tanya Zack does not work for, consult, own shares in or receive funding from any company or organisation that would benefit from this article, and has disclosed no relevant affiliations beyond their academic appointment.

ref. Ethiopian quarter: how migrants have shaped a thriving shopping district in South Africa’s city of gold – https://theconversation.com/ethiopian-quarter-how-migrants-have-shaped-a-thriving-shopping-district-in-south-africas-city-of-gold-266494

Ghana’s banks are not lending enough to sectors where it matters most, like agriculture and manufacturing

Source: The Conversation – Africa – By Abotebuno Akolgo, Postdoctoral Fellow, Bard College Berlin; Bayreuth University

Bank lending is a major source of funding for businesses in Ghana. It helps pay for operational expenditure and investment in expansion of productive capacity. Therefore, it is important that there is substantial, affordable, and accessible financial credit for all businesses in the medium to long term. More than this, it matters which sectors of the country’s economy receive most of its bank credit.

In a recent study of the sectoral distribution of bank lending in Ghana, I found that for two and a half decades, bank lending to the agricultural and manufacturing enterprises has been in sharp decline.

In the 25 years from 1999 to 2023, the share of total bank credit that went to the agricultural and manufacturing sector fell by about 65% and 56% respectively. For instance, in 1999, about 25% of total bank lending went to manufacturing businesses. By 2023 however, that figure had fallen to about 11%.

I am an economist with expertise in the political economy of money, finance, and development in Africa. My research on Ghana has attempted to explain the financial constraints to the country’s economic transformation since independence in 1957. I have previously written on Ghana’s sovereign indebtedness and its banking and monetary policies.

The findings in the current study matter because in Ghana, agriculture and manufacturing are crucial to creating substantial, sustainable, and shared economic growth. Agriculture is the second largest employer in Ghana’s economy after the services sector. It is also crucial for creating the raw materials that can fuel manufacturing sector growth.

The role of banks & finance in economic development

There is no single perspective among economists on how banks operate or should operate in an economy. There are those economists within neoclassical economics circles who hold the conventional, largely discredited view that banks act merely as intermediaries who take money from savers and lend to borrowers.

In contrast, there are those, particularly post-Keynesian economists, who assert, rightly, that modern banks do not merely receive deposits and turn them into loans. They insist that banks create credit for borrowers but not necessarily from savers’ deposits.

Still, most economists agree on some things. First of all, that finance is crucial to economic development. Secondly, that the banking system has a role in the flow of finance to individuals, households and businesses.

Not all forms of financial flows are healthy for economic transformation, however. The key then for successful financial policy is to distinguish between productive and unproductive credit.

Productive credit flows support the entrepreneurial innovation that is central to creating new products or expanding production levels. This kind of credit will for instance support agricultural production and expand manufacturing capacity and outputs.

Unproductive credit does not increase the level of output. For instance, lending to support household consumption or financial speculation is unproductive.

The Ghanaian banking system does not generate enough credit for the private sector. However, that was hardly the concern for this study. Of particular interest is the question: where does the credit go to?

Bank credit to agriculture and manufacturing has declined

My study set out to disaggregate the data on financial credit to the various sectors of the Ghanaian economy. These sectors included agriculture, manufacturing and services. The evidence shows that bank lending has not significantly supported real productive sectors such as agriculture and manufacturing.

As indicated in Figures 1 and 2, the shares of financial credit to the agricultural and manufacturing have been in decline. On average, over the last 25 years, 14.6% and 5.8% of total bank credit was allocated to manufacturing and agriculture respectively. In contrast, the services sector averaged 20.7% of bank credit. Commerce and finance sector received an average of 17.3% over the same period.

As productive sectors are denied sufficient credit, well-paid and sustainable jobs cannot be created in agriculture or manufacturing as most Ghanaians are reduced to informal petty trading of foreign goods.

Two main reasons have accounted for this dysfunction of the financial system. First, the foreign domination of Ghana’s banking sector, and second the failure of monetary policy. About 50% of banks in Ghana are foreign owned. Foreign banks tend to be more risk averse. They are less likely to lend to small and medium-scale enterprises (SMEs).

Second, the Bank of Ghana’s excessive focus on monetary stability through inflation-targeting is problematic. It often results in raising interest rates and, consequently, borrowing costs. This discourages private sector borrowing while attracting bank investments into government securities. Ghana’s inflation is largely driven by structural factors and not money supply problems. These factors include production and transport costs. Monetary stability through inflation-targeting is therefore a misplaced priority.

Besides, by focusing solely on monetary stability, the central bank is neglecting its role to support the overall development of the economy through credit policy. This developmental role is clearly set out in The Bank of Ghana (Amendment) Act 2016 (Act 918). This revised the 2002 Act to take account of the central bank’s role to support government economic policy and ensure an efficient operation of the banking and credit system.

Before the IMF-led financial reforms of the 1980s and 1990s which were necessitated by the 1980s financial crisis, the Bank of Ghana intervened, effectively and efficiently, to direct credit to priority sectors. For instance, in the early 1980s when the liberal financial reforms had not taken root in Ghana, the Bank of Ghana used a combination of credit ceilings, interest rates, reserve requirements, and mandatory lending ratios to direct credit to agriculture and industry. Credit ceilings ensured that banks could not lend beyond a certain limit to sectors other than agriculture and manufacturing. Lower interest rates were also offered to agricultural loans and in other instances, mandatory lending ratios ensured banks were forced to lend a certain share of loans to agriculture and manufacturing.

Drawing lessons from the present moment and past, I recommend a serious rethink of financial policy. A return to some level of credit policies, a deliberate support for indigenous participation in the banking system and a revitalisation of development banks such as the Agricultural Development Bank and the National Investment Bank.

The Conversation

This article is the outcome of research conducted within the Africa Multiple Cluster of Excellence at the University of Bayreuth, funded by the Deutsche Forschungsgemeinschaft (DFG, German Research Foundation) under Germany’s Excellence Strategy – EXC 2052/1 – 390713894

ref. Ghana’s banks are not lending enough to sectors where it matters most, like agriculture and manufacturing – https://theconversation.com/ghanas-banks-are-not-lending-enough-to-sectors-where-it-matters-most-like-agriculture-and-manufacturing-265433

Taking down malaria’s bodyguards: scientists target parasite’s secret defence system

Source: The Conversation – Africa (2) – By Tawanda Zininga, Lecturer and Researcher, Stellenbosch University

Malaria remains one of the world’s most devastating infectious diseases, claiming more than half a million lives each year. In Africa, the illness is mostly caused by a parasite carried by mosquitoes – Plasmodium falciparum.

When the parasite invades the human body, it faces a hostile environment: soaring fevers, attacks from the body’s immune system, and the stress of antimalarial medicines. Yet it can survive, thanks to an internal defence system made up of “helper” molecules known as heat shock proteins.

Among these, a powerful group called small heat shock proteins act as the parasite’s last line of defence. These molecules behave like tiny bodyguards, protecting other proteins inside the parasite from damage when conditions become extreme. They are the parasite’s emergency rescue team when energy reserves are dangerously low, such as during high fever or exposure to drugs.

In my biochemistry laboratory, we’re looking for ways to disrupt these bodyguards.

Master’s student Francisca Magum Timothy and I are using advanced protein-chemistry tools to examine three small heat shock proteins found in the parasite. These share a common core structure but behave differently.

We’ve found that they can be chemically disrupted. This marks an exciting direction for malaria research. Instead of directly killing the parasite, the approach focuses on disarming its defences, allowing other treatments or the body’s immune system to finish the job.

The next steps involve finding small, drug-like molecules that can specifically target and disable these parasite proteins without harming human cells. This will require advanced computer modelling, laboratory testing and eventually, studies in animal models to make sure the approach is both effective and safe. If successful, this could lead to a new class of antimalarial drugs that work in a completely different way from current treatments. This is an especially important goal as resistance to existing medicines continues to grow.




Read more:
Malaria scorecard: battles have been won and advances made, but the war isn’t over


From early laboratory work to developing a drug that could be tested in people will likely take around eight to 10 years, depending on how the candidates perform in each research stage. Still, the discovery of these heat shock protein targets represents a big step forward and offers real hope for more effective, long-lasting malaria control in the future.

Unpacking the mysteries of three proteins

We found clear differences between the three proteins we tested in the laboratory.

One was the strongest and most stable of the trio, the other was more flexible but less stable, and one was the weakest protector.

When tested in stress conditions, all three acted as “molecular sponges”, preventing other proteins from clumping together. That’s a crucial step for the parasite’s survival during fever. But their protective strength varied: one offered the most consistent defence, while the other lost structure more easily.

These findings suggest that the parasite may rely on a team effort among the three, each taking on a slightly different role during stress.

So we asked: could natural compounds found in plants disrupt these bodyguards? Our team focused on quercetin, a plant-based flavonoid. Flavonoids are among the compounds that give plants their bright colours, like red in apples, purple in berries, or yellow in lemons. They help protect plants from sunlight, pests and disease. These are abundant in apples, onions and berries. Quercetin is already known for its antioxidant and anti-inflammatory properties. Some studies have already hinted that it might slow down malaria parasites.

When we exposed the parasite proteins to quercetin, we observed remarkable effects. The compound destabilised the small heat shock proteins, altering their shape and reducing their ability to protect other proteins. In simple terms, quercetin appeared to confuse or weaken the parasite’s bodyguards.

Further tests confirmed that quercetin also slowed the growth of malaria parasites in laboratory cultures. When malaria parasites were grown in controlled laboratory conditions and exposed to quercetin, they multiplied more slowly than usual, including strains that are resistant to standard drugs. This is encouraging because it suggests that quercetin itself, or new medicines made to work like it but even more strongly, could become the starting point for developing a new type of antimalarial drug in the future.

Moreover, small heat shock proteins kick in when the parasite’s energy supply, known as ATP, the cell’s main “fuel”, runs very low. In simple terms, when the parasite is close to running out of energy and facing danger, these proteins act as its last line of defence.

Next steps

Our findings point to the possibility of drugs being designed that shut down these ATP-independent helpers and strike the parasite precisely when it is weakest.

Although quercetin itself is a natural compound found in many foods, its potency and stability are not yet strong enough for clinical use. The team envisions chemical modification of quercetin’s structure to create derivatives with enhanced activity and better drug-like properties.

As global efforts to eliminate malaria face growing challenges from drug resistance, innovations like this provide renewed hope. By turning the parasite’s own survival machinery against it, scientists may have found a subtle but powerful way to outsmart one of humanity’s oldest foes.

The Conversation

Tawanda Zininga receives funding from the National Research Foundation and the Medical Research Council, who have no role in the project and its outcomes.

ref. Taking down malaria’s bodyguards: scientists target parasite’s secret defence system – https://theconversation.com/taking-down-malarias-bodyguards-scientists-target-parasites-secret-defence-system-267029

Catherine Connolly and the paradoxes of the Irish presidency

Source: The Conversation – UK – By Eoin Daly, Lecturer Above The Bar, School of Law, University of Galway

Ireland is set to have a new president in the form of Catherine Connolly, an independent leftwing TD for Galway, and former deputy speaker of the Dáil.

The presidential election campaign was a colourful and eccentric spectacle. Since the Irish president isn’t an executive office with power over policy, the campaign focused on obscure ethical scandals around the two candidates, Connolly and Fine Gael candidate Heather Humphreys.

At times, though, the debate strayed into various policy issues despite the president having no power over these. The candidates’ views on everything from housing, disability, military neutrality and even foxhunting came under scrutiny.

For many, the campaign will have seemed awkward and profoundly odd. Ireland went through the rigmarole of a national election but for something for which the political stakes are undeniably low. This, in turn, reflects certain anomalies of the Irish presidency as a political institution.

The president of Ireland, a role created by the 1937 constitution, is the only national office elected directly by the people. The president will, therefore, have a very significant democratic mandate, and will tend to be a popular figure.

But this mandate is not matched by very much power. A president must campaign for a mandate from the people, yet once in office, finds no real conduit, other than speech itself, through which to make good on that mandate.

Presidential powers

In a parliamentary democracy such as the UK or Ireland – where the executive government is formed from within the parliament – the head of state will tend to have quite modest constitutional functions. Even where the head of state is a president, they will tend to have powers quite similar to those of a hereditary monarch. They formally sign bills into law and perform certain other strictly ceremonial constitutional functions, while serving as a symbol of continuity, national unity and so on.

One of the advantages of having an elective head of state, however, is that it becomes politically feasible to grant them more extensive powers of the sort that would be difficult to envisage for a monarch.

What exactly these powers are varies across parliamentary republics such as Germany, Italy or Greece. While Ireland’s post-independence constitutions mirrored many basic features of the British parliamentary system, they had elements of novelty and innovation as well. The office of the president was one of these.

Indeed, if someone were to read the constitution with no context, it makes the president seem like a potentially key player in the political system.

In particular, the constitution seems to envisage the president being a sort of arbiter in the legislative process, particularly in the event of deadlock between the two houses – the Dáil and Seanad (senate). These powers arise, for example, in the event of disputes over what counts as a “money bill”, or reducing the time the senate has to consider bills during a public emergency. The president also has, in theory, a power to refer bills to referendum, where petitioned by a majority of the Senate and one-third of the Dáil.

Douglas Hyde
Douglas Hyde, Ireland’s first president.
Wikipedia

However, this potentially important umpire role has never really materialised in practice, mostly because these powers seem to envisage situations of dispute between the two houses that have hardly ever arisen in practice. The senate has never really posed much of a barrier to government legislation coming from the Dáil, partly because the taoiseach gets to nominate almost one-fifth of its members. Governments therefore have an almost guaranteed majority in the upper as well as lower houses. Any notional role of umpire for the president becomes redundant in a legislative system so dominated by the government.

The president does also have the power to refer bills to the Supreme Court to test their constitutionality, a power that has been used 16 times. However, relatively few constitutional controversies have been resolved through this process. The more common route to resolving any doubts about potentially unconstitutional laws has been through via advice from the attorney general.

Beyond legislation, the president is theoretically a potential kingmaker in the process of government formation. Unlike the British monarch, the president cannot “invite” anybody to form a government. But they can refuse a taoiseach’s request to call a snap election, if the taoiseach has lost the confidence of the Dáil. But again, the role notionally envisaged for the president, as a kind of arbiter within the political system, never really materialised in practice, as an expectation emerged of presidents having a passive and ceremonial role.

With many of their formal powers becoming more or less redundant, a president who was campaigned for and received the people’s trust must fulfil that mandate by some other means. More recent presidents, especially Mary Robinson and the outgoing president, Michael D Higgins, have sought to express their democratic mandate more in the realm of symbolism than in the exercise of any hard power. Higgins controversially used the presidency to speak out in the range of topics, from housing and inequality, to the issues of neutrality and genocide on the international stage.

Michael D Higgins
Michael D Higgins: an outspoken president.
Shutterstock/D. Ribeiro

But the controversies of Higgins’ tenure neatly reflected the wider paradoxes of the Irish presidency. Many of the powers of the office – at least the discretionary powers where the president has some choice – are almost redundant. Its legitimacy and clout is expressed almost exclusively in the symbolic realm. Higgins gave voice to widely held concerns of injustice and inequality both in Ireland and globally – but it would be difficult to argue that this shifted the political needle leftwards in Ireland during his tenure. It is in that context that another relatively radical figure will assume office as president of Ireland.

The Conversation

Eoin Daly does not work for, consult, own shares in or receive funding from any company or organisation that would benefit from this article, and has disclosed no relevant affiliations beyond their academic appointment.

ref. Catherine Connolly and the paradoxes of the Irish presidency – https://theconversation.com/catherine-connolly-and-the-paradoxes-of-the-irish-presidency-268245

Blue Jays fever sets in as Canada takes in the World Series for the first time in 32 years

Source: The Conversation – Global Perspectives – By Russell Field, Associate Professor, Sport and Physical Activity, University of Manitoba

Late on an October Monday night, George Springer smashed a three-run homer to send nearly 45,000 fans in Toronto’s Rogers Centre — and a record national television audience — into a frenzy.

Six outs later, the Blue Jays had qualified for the 2025 World Series against the defending champion Los Angeles Dodgers.

It had the feeling of a denouement. Yet, like other famed home runs in Blue Jays history, Springer’s blast was just one step in the long journey through baseball’s three playoff rounds.

Edwin Encarnacion’s extra-inning walk-off homer against the Baltimore Orioles in 2016 only won an elimination wildcard game.

A year earlier, Jose Bautista’s then-audacious bat flip followed a dramatic home run — also like Springer’s hit in the seventh inning — that moved the Blue Jays onto the same championship series round that they had not won since 1993. Until this year.

The enduring legacy of 1993

Invoking 1993 holds special resonance for Blue Jays fans. It’s the last time the team won, let alone reached, the World Series.

That year produced the most dramatic home run in team history. Joe Carter’s Game 6, ninth-inning, three-run blast to left field was only the second time a World Series had ended with a walk-off home run. It clinched the team’s second straight championship.

Addison Barger is the latest Jay to hit a historic home run. He became the first pinch hitter in World Series history to hit a grand slam to propel the Jays to a decisive 11-4 victory in the first showdown in the Toronto-Los Angeles matchup.

It is easy to tell the story of the Blue Jays through the lens of dramatic game-winning home runs. However, the context of the team’s championships —and near misses — offers a more nuanced tale.

Building a contending team

Toronto, thanks to funding from Labatt Breweries, was granted an American League expansion franchise in 1977, alongside the Seattle Mariners — the team Toronto just vanquished in the championship series this year. The Mariners remain the only current franchise never to have played in a World Series.

Following a handful of dire losing seasons, Blue Jays management earned a reputation for talent development. The first crop of stars — Dave Stieb, George Bell and Tony Fernandez — won a division championship in the team’s ninth season. They fell one game short of qualifying for the World Series, losing the only seventh game in a post-season series in franchise history prior to this year.

That team played in an open-air, refurbished football stadium. Fans chilled by the cool breezes off Lake Ontario did not enjoy the irony of cheering on their brewery-owned team in a venue where beer sales were prohibited by provincial edict.

Modernity came to Toronto in 1989 when the team moved into SkyDome, a then-state-of the-art domed stadium complete with retractable roof (and by then, beer vendors) that was funded and operated by a public-private partnership.

After playoff disappointments in 1989 and 1991, that generation of Blue Jays stars broke through in 1992 to reach the World Series for the first time. Prior to the second game at Atlanta’s Fulton County Stadium, the U.S. Marine Corps colour guard walked onto the field with the Canadian flag flying upside down.

The controversy was integrated into circulating narratives that Americans did not respect Canadian teams. It is a still-perpetuated trope: the Toronto Star has spent this playoff run reporting on “what the U.S. media said” about Blue Jays’ victories, as though that matters.

The Blue Jays 2025 success — realizing the promise of a new generation of star prospects headlined by Vladimir Guererro Jr. and Bo Bichette — has rekindled memories of these past glories: the first winning teams of the 1980s, the back-to-back champions in 1992-93 and the bravado of the Bautista-Encarnacion-Josh Donaldson teams from a decade ago.

Lost in this pantheon of star players and dramatic moments, however, is the two decades of mediocrity that followed the heights of the Carter home run.

Changes in corporate ownership

The Blue Jays core aged or moved on and Labatt’s was purchased by the Belgian conglomerate, Interbrew SA.

A more dispassionate, bottom-line ownership led to teams that failed to reap the talents of Hall of Famers like Roy Halladay and major stars like Carlos Delgado and Shawn Green.

Rogers Communications purchased 80 per cent of the Blue Jays in 2000, with Interbrew retaining 20 per cent. The on-field performance changed little, but the business model evolved significantly.

Rogers acquired the remaining 20 per cent of the team in July 2004. Before the year was out, it had gained control of SkyDome for $25 million, a fraction of the $600 million that the stadium has cost to build only 15 years earlier. Now fully privately owned, it was renamed the Rogers Centre.

Today, the Blue Jays reflect the vertical integration of modern commercial sports. The team is the primary tenant in a stadium operated by their owners. Their games are broadcast on television channels, radio stations and streaming services owned and operated by Rogers Communications. These channels market other Rogers-owned content during Blue Jays games.

Meanwhile, fans consume this content on cable subscriptions and internet services that are Rogers’ core businesses. The newest extension of this revenue-generation model is the increasing prominence of sports betting, which is integrated fully into broadcasts by on-screen commentators providing odds as though delivering sports “news,” not paid advertising

Canada’s team

The production and circulation of dominant narratives is a consequence of such a structure, what sociologist David Whitson termed “circuits of promotion.”

One of the most powerful is that the support for the Blue Jays is nationwide. They are Canada’s team. There is an element of truth to this. The Blue Jays’ fan base is considerable, particularly when they are winning.

But this is also a marketing construct — one that benefits from the Blue Jays being the only remaining Canadian-based team in a U.S.-operated professional sports league. This would be a much harder narrative to sell if the Montreal Expos were not now the Washington Nationals, and it is not entirely novel.




Read more:
Toronto Blue Jays: Amid Canada-U.S. tensions, ‘Canada’s team’ is excelling at America’s pastime


Basketball’s Toronto Raptors, themselves the beneficiaries of the relocation of the Vancouver Grizzlies, capitalized on both the team’s appeal as well as its monopoly on Canadian markets with its wildly popular 2019 marketing campaign, “We The North.”

Come Friday night, when Trey Yesavage throws the first pitch of the 2025 World Series, the absence of other Canadian-based teams and the centralization of media outlets in Toronto will ensure there will be a ready (and passionate) audience across the country all ready to chant: “Let’s go, Blue Jays!”

The Conversation

Russell Field does not work for, consult, own shares in or receive funding from any company or organisation that would benefit from this article, and has disclosed no relevant affiliations beyond their academic appointment.

ref. Blue Jays fever sets in as Canada takes in the World Series for the first time in 32 years – https://theconversation.com/blue-jays-fever-sets-in-as-canada-takes-in-the-world-series-for-the-first-time-in-32-years-267943

Autism charities portray autistic people as helpless and a burden – our research shows why it matters

Source: The Conversation – UK – By Helen Abnett, Research Fellow, University of Hertfordshire

Roman Samborskyi/Shutterstock

Autism charities are important organisations. They provide essential services for autistic people, influence policy decisions, and often speak on behalf of autistic people.

This means that how these charities write about autistic people may influence how society understands what it means to be autistic. The words and pictures that autism charities choose to use affect how autistic people are understood, perceived and cared for. This really matters, as autism is still often stigmatised.

Our recent study shows that the language and images large autism charities use mainly portray autistic people as a problem. In contrast, charities represent themselves as the solution to this problem.

In England and Wales, different kinds of charity organisation are crucial providers of public services. Charities are often seen by government as the best way to meet the needs of less-heard or underserved groups, including autistic people. Some receive specialist care and education services from autism charities.

These charities also influence policy discussions and decisions. Research conducted by autism charities is regularly mentioned in parliament. The NHS refers autistic people and their carers looking for support to both national and local charities.

Previous research has shown how certain types of charities (particularly large international development charities) describe the people they are seeking to support in developing country communities in negative and problematic ways. People are often portrayed as “passive”, “voiceless” and “(culturally) backward”.

Similarly, a small amount of research demonstrates that autism charity advertising and websites consistently convey negative portrayals of autistic people. For example, one previous study describes how an advert for a UK charity depicted autism as “a child-enveloping monster that had to be destroyed to allow a boy to live a normal life”.

How we conducted our research

For our study, we identified the largest autism charities in England and Wales. We used data held by the Charity Commission to identify charities with incomes of £10 million or more and that only provided support to autistic adults, children or both. There were 11 charities that met these criteria. Then, we downloaded the most recent annual reports and accounts for these charities.

We explored how autism charities described autistic people, themselves and the government. We used critical autism studies – which seeks to question stereotypes, and views autism as a difference rather than a disorder – as an approach to evaluate and explain the reports, and suggest how things could be improved.

We found that autistic people are largely portrayed as problems, as challenging and as a burden. Autistic people are frequently depicted as being needy and infantile. Every single charity depicts autistic people as needing to change. Autistic people, they say, should be more communicative or resilient.




Read more:
Why the autism jigsaw puzzle piece is such a problematic symbol


We think that the use of this kind of language and imagery has negative consequences for wider societal attitudes towards autistic people. In contrast, in these documents, charities – who did not appear to be led by autistic people – represented themselves as experts, with the authority to act for and speak on behalf of autistic people.

This links to an overwhelming message in the reports that these charities need to be able to do more, to be bigger and often better-known, and that they need more funding to enable them to achieve this.

Gigantic red hand points at defeated man sitting on red floor.
Charities need to help foster agency in people with autism.
Master1305/Shutterstock

This seems to reflect the “non-disabled saviour” trope that has been found to be common in popular culture. This trope highlights the action, even heroism, of non-disabled people “saving” disabled people, rather than centring disabled people’s agency.

All these charities also describe themselves as being funded by government. Alongside this, however, government is primarily portrayed as a barrier to the effective provision of services for autistic people. Government funding and policy decisions are described as arbitrary and inconsistent. It suggests a government (at both local and national level) that is ineffective and unreliable.

What should change?

We hope our findings encourage autism charities to reflect on how they describe the people they exist to support. Words and imagery should convey the reality of autistic lives rather than leaning on outdated notions of pity or burden.

That starts with meaningful autistic representation at every level of charity leadership, including decision-making roles. Representation shouldn’t be tokenistic. It should shape how organisations operate and communicate.

Charities and governments also need to rethink the current system of service provision and funding, which often leaves charities overstretched and autistic people underserved.

Most of all, we hope our research helps to contribute to a society that recognises autistic people not as problems to be solved, but as people to be valued and understood on their own terms.

The Conversation

Helen Abnett has previously received funding from the Economic and Social Research Council.

Aimee Grant receives funding from the Wellcome Trust, MRC and ESRC.

Kathryn Williams receives funding from the Economic and Social Research Council. She is also the research director for Autistic UK CIC, a non-profit Autistic-led organisation seeking to improve the representation and wellbeing of Autistic adults across the UK.

ref. Autism charities portray autistic people as helpless and a burden – our research shows why it matters – https://theconversation.com/autism-charities-portray-autistic-people-as-helpless-and-a-burden-our-research-shows-why-it-matters-267385